Questionnaire Results
xué would like to thank all those who participated in our research into the experiences of parents and carers of children and young people with Autistic Spectrum Disorder
Research into the needs of Parents/Carers of Children and Young People with Autistic Spectrum Disorder
xué's main purpose is to support individuals to be clear about their goals and to develop the insights, skills and determination to achieve them. Central to all we do is the belief that you need to work with the whole person rather than separating off different areas of their life.
In our work we have become particularly conscious of the specific needs of parents and carers, especially those who have children with autistic spectrum disorder, who feel that their lives are often put on hold. As a result we have undertaken research with parents and carers with the support of 4 organisations: NASS, Eagle House Group, Cambian Education and Queensmill School.
We are very pleased at the level and quality of responses from parents and carers. Their feedback has reinforced our learning and our desire to develop targeted services to meet this need.
A summary of the findings is below:
Questionnaire Results . . .
(click here to download PDF format of questionnaire results >)
Questions
|
YES
|
NO
|
| Q1 |
Do you currently receive any personal support as a parent/carer of a young person with ASD? |
28.6% |
71.4%
|
| Q2 |
Have you considered seeking help for yourself to develop your own needs? |
71.4%
|
28.6% |
| Q3 |
Do you find you have personal challenges? |
100.0%
|
|
| Q4 |
If the answer to Q3 is Yes, what are they?*
- unable to hold down a job since my son's
diagnosis
- experience of high levels of stress experienced
by self and family
- concern about lack of public knowledge and
understanding
- difficulty in altering career path, therefore
reducing potential financial options and
opportunities
|
|
|
| Q5 |
Would your life as a parent/carer be made easier if your own needs were understood and developed? |
100.0% |
|
| Q6 |
If your answer to Q5 was Yes, what are the 3 most important needs?*
- 'proper me and family time' including interests
and work
- developing skills so as to have a stronger presence
and to be able to influence those who can help or
have the resources
- the chance to develop my private life and
relationships
- help to deal with feelings of grief and need to
'move on'
- to have time for my own creative pursuits and be
able to have a fulfilling career
- to remain healthy, as this is very important in
being able to support my autistic child
|
|
|
| Q7 |
Could your own needs be supported by meeting other parents/carers? |
85.7% |
14.3% |
| Q8 |
Do you think that time to understand yourself and your needs would help? |
100.0% |
|
| Q9 |
Is the ability to manage your time effectively important to you? |
92.9% |
7.1% |
| Q10 |
Would you consider developing your physical and mental wellbeing to support your life? |
85.7% |
14.3% |
| Q11 |
Would distance be a problem when thinking about finding support for your needs? |
71.4% |
28.6% |
| Q12 |
Would travelling be a problem when thinking about finding support for your needs? |
64.3% |
35.7% |
| Q13 |
Would finance be an issue when considering support
|
92.9% |
7.1% |
| Q14 |
If a package was organised which included personal coaching, accommodation and some recreational activity, would it appeal to you? |
92.9% |
7.1 |
* A selection of typical and significant responses
